Day 5 Hospital 2012

For those that may not be aware my news temporary address is Cedar Sinai room 4109. Like said its been 5 days, 5 IVs (apparently my body is rejecting them) which considering IV is to stop seizure or stop pain I am annoyed. The nurses are discussing starting a Picc line to result in fewer problems.

My seizure meds are still being fiddled with. I also have noticed that pain is a trigger which we are addressing unfortunately for me that is via morphine which is a very temporary solution.

I am going to apologize here bc writing this isn't easy. I feel it is very important so please understand my errors and mistakes.

I have a new internist- Dr Wool. His intelligence,  excitement and intrigue for what he does shocks me each day.  He has called in a team of rheumatologists that are certain I have an autoimmune disorder. No this isn't new. We have heard and played it before. One thought is it it flares and tests will show better now than during a non-flare. So we did a lumbar puncture twice. I have officially experienced the most painful experience of my life. Part of the results are back and all we have learned is I failed to be vaccinated against Hep B (or it wore out) lots still pending. I would have happily gotten the damn vaccine vs the test for future reference. I have never been one to scream during intense pain - quite opposite. Very quiet cry am internalize. Its been I think two days and I am humiliated at my level of volume, pain and telling the doctor to quit midway. Instead he ignored my rants and did punctured again. I never doubted the spine held all nerve endings- you wouldn't believe the place it incited level 20 on a 10 being the highest pain level possible. Evil!

Last night I had an MRA to check the varying vessels in my neck and brain - with the help of contrast. After they were so generous to share the images. What am amazing view of my own body.

I am starting to experience strong pain so for now that's good bye. Please feel free to comment here, facebook or text. I miss he so much but not soon.

I am dedicating this to Heather Edwards. This past week she was lost after giving birth. I wish had told her that her strength and kindness during a very difficult time kept me at work smiling. It was the beginning of this illness - I had knives coming from all directions. I consider myself blessed. I know being a mother was her dream. I will never understand. I know God is with her husband, baby, family and friends. Please pray for them.